Behind the diagnosis, children and their families share stories of strength, resilience, and hope.

Stories

Adam was diagnosed with XLP2 at just 18 months old, after a year of searching for answers.

For him, XLP2 currently mainly shows up as ongoing, severe gastrointestinal issues.

He loves excavators and singing along to Blippi's songs.

Reach out anytime for support or questions

Email

contact@parentsagainstxlp2.org